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Volunteers help hand out family history project surveys in the 75 Francis St. lobby.
Did you complete the U.S. Surgeon General's Family Health Portrait? If "no," what is the reason for not completing it? If "yes," did you have any difficulty completing it?
These are a few examples of questions on the BWH Family History Project survey. The team seeks feedback through this survey about the Family Health Portrait tool, even from those BWHers who have not completed it. With a grant from the NIH's Human Genome Institute, BWH launched this year-long initiative to strengthen the role of predictive genetics in health care. The evaluative survey will focus on the progression of the project, not medical information.
Project coordinators are not expecting the surveys to show entirely positive or negative results, but instead, are hopeful enough people will participate to provide ample feedback to the NIH. "This project is important on a national level," said Karen Holbrook, genetic counselor and Family History Project coordinator. "The surveys allow us to check in and evaluate how to improve the process and ensure we are contributing positively to personalized health care."
The surveys provide feedback necessary for health care providers to better understand how to incorporate this information most effectively into medical care. The first round of surveys is from March 3 to 17, and the second round will take place in October. Results for the surveys will be analyzed when both rounds are complete. Survey drop off boxes can be found outside the cafeteria, at the 15, 45 and 75 Francis Street hospital entrances, Mailroom, One Brigham Circle, Neville House, 850 Boylston, 111 Cypress, 221 Longwood, Channing Laboratory, Southern Jamaica Plain Health Center, and the Brookside Community Health Center. Surveys can also be sent by inter-office mail to: Family History Project NRB Room 466E.
Fill out the survey online at www.bwhpikenotes.org/FamilyHistoryProject/Introduction.asp